I know I was a parent who wanted to understand as much as I could about what was going on in my son’s body. More than anything, I wanted to know how to help him! I’ve met many parents who want to know how to support their child at home. Here is a list of YouTube channels, podcasts, and websites that can help you find information about childhood cancer.
Video Information about Childhood Cancer
Two YouTube channels that have great general information come from the National Cancer Institute and Icon Cancer Centre. The National Cancer Institute has a playlist called “When a Child Has Cancer” and it has information on how to keep notes when the doctor comes in, how to talk to your child and how to support your child at home. With the Icon Cancer Centre has some general information available in different languages such as Vietnamese and Bahasa. YouTube is also great for searching up specific side effects or conditions your child may have. I found this very helpful and used the information to ask my doctor questions.
Podcast Information
A great podcast if you are interested in the nitty gritty science behind childhood cancer treatments, protocols and side effects, is Understanding Childhood Cancer with Dr. Geoff. It is potentially overwhelming because it does include medical terminology. The talks can be hard to follow for a long time with many uncommon terms. It does have great answers and information if you are quick to pick things up or are willing to take the time to google terms or concepts that are not familiar. The Lighthouse Podcast shares stories from families who have gone on a cancer journey and has some informational episodes. It’s great because it’s parent to parent. It is easy to relate to and hearing about trials or resources other families tried is helpful.
Blog Information about Childhood Cancer
We at Cancer Kids Resources provide information on that is helps children and families cope on a cancer journey. We have blogs that share about resources we have experience with and have used. There is also information on how communities can provide support for people they know who have a child with cancer. Alex’s Lemonade Stand has a blog that shares information on research ideas. They also share facts about different types of cancer.